Day 9

I was supposed to get the PICC line flushed and dressed tomorrow, but there was a small sore under the dressing which itself had started to pull away. It has been so hot and I think the adhesive can't cope well with with sweaty skin. I rang the hospital and they were not very busy, so I was able to get it done today. One less thing for tomorrow.

Tomorrow is another CT scan. I think this is the one that is going to be used as the baseline for evaluating results of the clinical trial. It is going to take some time - I have to drink some dye liquid over an hour and a half before the scan. I don't know if they will inject dye this time as well.

I am thinking that I may go in to RPH by train from Fremantle to save Kevin having to take me in and either wait around for a couple of hours or go home and come back which is time consuming and expensive. I will see how I feel tomorrow - I was a bit shaky this morning and didn't want to drive myself so he took me to the hospital.

Otherwise, I have felt well today, though I needed a Pramin first thing. A bit tired, because I didn't sleep well last night again. I had a brief nap this afternoon. And my appetite is good.

Day 12

I have felt as well today as I did before the diagnosis. There is still a low level nausea (which I have had for months, now that I look back) which worsens when I go more than 4-5 hours without food.

Even the tiredness is less. However, I took myself into Fremantle today and found I was unable to spend a lot of time wandering the shops. I had to drag myself back to the car after an hour and a half.

I am a little concerned about the dressing over the PICC line. I think the tube is wearing its way out through its covering. If it does I will slap on another dressing pad. Hardly worth a hospital trip when Tuesday is the start of the next treatment cycle.