A bit like the curate's egg

Today was good in spots.

There was good news from the CT scan. The liver tumours are shrinking. One which was 2.6 cm in January is now 2 cm and another is now 1.4 cm (it was 1.8 cm). To quote the report "similar reduction in size is seen in a number of lesions within the liver and no new deposits identified". YAY! The lung nodules are unchanged since the last scan, and the oncologist says that this may very well indicate that they are not tumours. I am very hopeful that this is the case.

The tumour indicator from the last blood test on Tuesday showed another reduction. Last cycle it had jumped to 1700, now it is 1100. Still a long way to go, though.

I am to have two more cycles of FOLFOX 6 using the PICC line, which will take me to the end of April. Then the line is going to be removed and I am to have Avastin every three weeks and Flouracillin in tablet form. The Oxyplatin will be suspended for a while since I am having such a strong reaction to it. This means that we do not have to worry about getting the PICC line dressed while we are in Queensland in May. I will be glad to see the end of it - it is both unsightly and uncomfortable as the dressing over it irritates my skin.

The oncologist is also going to confer with the colonorectal surgeon regarding possible removal of the primary cancer in my bowel, but we won't know any more about this till the end of April.

And today's not so good part? While I was booked in at 2.30 pm for the chemo, I didn't get into the chair till 3.45 and the actual infusion did not not start till 4.30. We left the hospital just before 8. So I will still be wearing the pump when we go out to lunch on Friday with sister and brother in law to celebrate my birthday .

Last day - new cycle tomorrow

I went to have my blood test this morning. It was not a long wait, but I used up most of the parking time I paid for. I hope all is well with my white blood cells - I am due to start cycle 7 tomorrow.

The results of the CT scan I had on Thursday should be with the oncologist by now, so I am hoping that there will be good news about tumour shrinkage to report tomorrow.

While I am still suffering from tingling fingers when I touch cold stuff, my tongue is not quite as sensitive as it was earlier in the cycle and I can taste a bit better. Still hurts with spices though, so curries are off the menu for the foreseeable future. However, I did enjoy a hot cross bun for morning tea today. I know the lack of taste will be back tomorrow.

A family gathering

Son Martin turned 39 on Friday (where did all those years go?) so we had a barbecue lunch today to mark the occasion. Daughter and partner (and their puppy) and us were present.

Martin does not socialise well as a rule. He was a drug addict for 20 years and still suffers from depression (and, I think, bipolar disorder). However today went well.

I prepared some pork fillets cut into chunks, marinated in orange juice and mustard, threaded on skewers and accompanied by a slaw of red cabbage, Granny Smith apple, carrot and green onion with a sour cream and mustard dressing. Then there were prawns which had been marinated in lime and chilli, Italian sausages, a green salad and some fresh olive bread. The food was a dead loss as far as I was concerned - could have been cottonwool or cardboard, but everyone else seemed to enjoy it. I still enjoy cooking, but can see the time approaching when I won't feel like doing it if I can't enjoy it.

However, the day was a success so far as family interaction was concerned and I am pleased about that.

A Shitty Day

Literally. The diarrhea started in the middle of the night and continued to mid afternoon when the Gastro-Stop finally worked. I have Googled and diarrhea caused by the contrast solution can be a problem after a CT scan, though it has not affected me with the previous 3 scans.

I am still really tired, plus I am having problems with my mouth - fortunately no ulcers, but bad tingling. Food tastes like cottonwool today as well. Hope tomorrow is better.

Exhausted

I got up early and drove to the hospital before 8 am to have my PICC line dressed. The traffic was appalling - an average of 25kph for the major part of the journey. The drive home was a breeze.

I had to fast for four hours before my CT scan which was scheduled for 1.15 pm. I find that if I don't eat regularly I start to feel nauseous, and this happened today. Fortunately I wasn't sick, though by the time they finished with me it was after 3 pm. I bought a tuna patty at the hospital canteen - disgusting! It was dried out and of course tasteless for me. Kevin had dropped me off at RPH and after the scan I caught the train back to Perth and then to Fremantle where he picked me up.

I am now exhausted. Fortunately I cooked some braised beef and mushrooms the day before yesterday, so I don't have to worry about dinner tonight.

A Shopping Spree

I returned 2 books to the library today, so decided to look for some new leather gloves at Garden City since the department stores are in full winter stock mode despite the temperature today being in the high 20s and uncomfortably humid after the storm last night. At least we got some rain - the first since November last year.

I believe I am going to need the gloves when it gets cold - I suffer from Reynaud's Syndrome anyway and the Oxyplatin is also affecting my fingers. I wanted fine leather without a lining for maximum flexibility.

Gloves found and bought, I bought some night cream, then decided to look in a kitchen ware store for a small saucepan to use on our new induction cooktop. I have had to discard one which I used lots. I found one, then noticed there was a special on a pressure cooker - almost half price. My old pressure cooker is aluminium and therefore unuseable on the new top. I like to use a pressure cooker for soups in winter, so that was added to the purchases. Then I used a book voucher I was given for Christmas. I haven't bought so much at once for ages! I must confess that it rather fatigued me too.

My mid-treatment CT scan is on Thursday and my next chemo is scheduled for next Wednesday. I am hoping for a good report.

An excursion

I haven't had anything much to write about for the last few days. This cycle is following the pattern I have become accustomed to, with tiredness starting to peak as I approach mid-cycle. I am not nauseous or suffering from diarrhea. I get hungry, but I can't eat much because I can't taste much either and the tingling in my mouth is unpleasant if the food is cold. The fingers still tingle badly when I touch cold things, though I have learned to use a cloth or oven holder to get stuff from the fridge, and there have been no droppings or breakages lately.

We did a big excursion on Saturday in the late afternoon to the annual Sculpture by the Sea at Cottesloe Beach. There are lots of pictures on my other blog. It was crowded, but you could usually get a photo of a sculpture without extraneous bodies. I did include one in this: it was great to see the interaction.


We were there for more than two hours, walking up and down stairs and paths . Despite our best efforts we did not see everything, as we discovered when we looked at the catalogue later. I thoroughly enjoyed the outing.

Afterwards we went to Fremantle Fishing Boat Harbour where we shared a fisherman's basket at one of the fish and chip places. The seafood component was very nice - the chips were horrible. I was a bit wobbly as we crossed the railway line to get back to the car, so it was an early night for me.

Yesterday we had visitors for lunch and I made a fish pie (snapper, prawns and scallops in a herbed marscapone and sour cream sauce with a cheesy potato topping). Everyone else liked it - I couldn't taste it and only ate half my portion though I finished it later in the evening. Dinner was leftovers. Kevin ate some of the Chili con Carne he made the other day. I cannot eat it - chili really hurts my mouth these days. Bummer - I love spicy food.